On Tuesday 4 December 2013 NASS took our AS it is campaign to Scotland. A round table discussion on AS took place in the Scottish Parliament.
We are grateful to Anne McTaggart, MSP for initially sponsoring this event and to Nanette Milne, MSP for all her help on the night. Our thanks also go to Dr Stefan Siebert for chairing the meeting.
The round table was intended to bring together key stakeholders for a discussion about the experience faced by people living with Axial SpA in Scotland today, including the challenges of getting a timely diagnosis and appropriate treatment.
Joining people with AS around the table were clinicians, health care professionals and Members of the Scottish Parliament.
Debbie Cook, NASS Chief Executive, updated everyone on what patients in Scotland are looking for in terms of diagnosis and management. She drew on the results of our patient survey which more than 1,500 of you kindly took part in this summer.
Jean Morton, from the NASS Glasgow Gartnavel Branch shred her personal experiences, including her 20 year wait for a diagnosis and also talked about the problems her niece has faced more recently in getting our diagnosis.
Professor David Marshall, Consultant Rheumatologist at Inverclyde Royal Hospital spoke about clinical challenges and successes, particularly highlighting the need for a pan-Scotland MRI protocol. Finally Dr Gareth Jones, a senior lecturer in epidemiology at the University of Aberdeen, spoke about his work with the Scotland and Ireland Registry for Ankylosing Spondylitis (SIRAS).